Not having the chemotherapy element has made a huge difference to my side effects. I did not have the excruciating pain in my knees. My immune system, I am presuming, has not been reduced, and finally, my bowels have been behaving a little better. Although I doubt that they will ever be back to normal.
On the subject of immune systems, I have pointed out before that having no immune system means that in the event of catching a cold there is no snot. Which is a huge bonus. Indeed over the last few weeks, in spite of the fact that I am the one with an incurable disease I was without doubt the healthiest member of my immediate family, as I was the one who caught the truly awful cold last, got over it quickest and didn't get through industrial quantities of tissues. Every cloud...
As far as other side effects go, I have recently been suffering from unbelievable fatigue. Previously I was fairly knackered during the first week or so. This time round the tiredness has descended during the third week. As a general rule, I do take things easy. My fatigue comes in two ways, either a general slow creeping up on me, or like a switch. If it's the latter I have to literally stop in my tracks. I work part-time and on occasion have to leave early so that I can go to bed. When I am not at work I make sure that I have an afternoon snooze, which helps with the fatigue. This time round nothing seems to really shift or help with my fatigue. Having said that, I do not find that I am mentally fatigued, which is a feature of my early onset tiredness. This time round it is just physical and the thought of doing anything strenuous overwhelms me. I can only hope that things improve before my next round of treatment in a few days.
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